American Council on Science and Health56m
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
Florida Politics2d
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Med Device Online2d
A Look At AI-Driven Medtech For Rare Disease Diagnosis
Recent advances in AI, including machine learning, natural language processing, and deep learning models, are transforming ...
Tyla4d
Rare disease explained after Gene Hackman’s wife Betsy Arakawa’s death is confirmed to be from hantivirus
Hantavirus explained after Gene Hackman’s wife Betsy Arakawa’s death was confirmed by chief medical examiner Dr Heather ...
What Is Hantavirus? All About the Rare Disease Spread by Rats That Led to Betsy Hackman's Death
Gene Hackman’s wife Betsy died from hantavirus pulmonary syndrome, a flu-like virus linked to rodent droppings. Here’s what ...
'I was diagnosed with a rare condition after my dog excitedly bumped into me'
A former RAF nurse claims her family's dog inadvertently led to her diagnosis with a rare lung disease. Pat Gildea was ...