I feel lucky to have finally received my CF diagnosis as an adult — but I often think of my sister, who lived a lifetime of illness without ever getting the answers she deserved.

When I received a lung transplant as a child, I didn’t realize the trauma from that experience would follow me well into adulthood.

Being a mom with cystic fibrosis has brought many highs and lows — especially while navigating two double-lung transplants. Over the years, I’ve learned many lessons about what it means to parent ...

Growing up with CF made school challenging — not only because of hospitalizations and absences, but also because my teachers and classmates often didn’t understand what cystic fibrosis was.

I tried to put school and work first, convincing myself my CF could wait. That is, until an infection stopped me in my tracks, leaving behind physical, emotional, and financial consequences.

My sister and I have shared so much — childhood joys, crowded bathrooms, and now, the fight for those still waiting for the promise of CFTR modulators.

Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.

I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned.