Cyclists led by Charlie Nuck will arrive in Bar Harbor Saturday to raise awareness and funds for the rare neurogenetic ...

Two men have cycled across the country to honor a late friend and raise awareness and funds for a rare disorder.

That’s exactly what Charlie Nuck and Todd Downey, both from Ohio, have done. After biking more than 4,200 miles from Anacortes, Washington, the pair arrived in Bar Harbor, completing a two-month trek ...

July 25 is the awareness day for a very rare syndrome, but one that a local child has. Carter Dreckman is a 3-year-old from ...

A teenager is taking on a charity challenge to cycle over 2,600 miles (4,184 km) around the UK visiting 60 Great British ...

A 19-year-old is due to cycle 2,600 miles, visiting all 60 of the UK racecourses to raise money for Diverse Abilities and the Injured Jockeys Fund.

Maine (WABI) - After 61 days and approximately 4,200 miles, two men have made it to Maine to wrap up an epic journey. At the ...

Luke and Paetyn Dreckman will be hosting the Caring for Carter Golf Tournament to raise awareness and funds for the rare genetic disorder their son was diagnosed with at 10 months, CTNNB1.

Several new laws went into effect at the beginning of this month. One of them helps children, and their families, who are ...

A $1.1 million grant from the parent-caregiver-led Rare Bird Foundation to Weill Cornell Medicine is supporting the launch of ...

Good morning, Newport! 🗓️ Today is Friday, July 25, the 206th day of 2025. There are 159 days left in the year. 🚨 You need ...

The Purdy family shares their insights on navigating their child’s rare neurodegenerative disease and their direct ...