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Cyclists to arrive in Bar Harbor after cross-country ride to raise awareness for rare disorder
Cyclists led by Charlie Nuck will arrive in Bar Harbor Saturday to raise awareness and funds for the rare neurogenetic ...
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Bike 4 Briar nears end of cross-country journey
Two men have cycled across the country to honor a late friend and raise awareness and funds for a rare disorder.
Ultragenyx’s GTX-102 Receives FDA Breakthrough Therapy Designation for Angelman Syndrome
Ultragenyx Pharmaceutical Inc. (NASDAQ:RARE) is one of the most promising stocks according to Wall Street analysts.
From coast to coast: Cyclists ride 4,200 miles to raise awareness for rare disorder
That’s exactly what Charlie Nuck and Todd Downey, both from Ohio, have done. After biking more than 4,200 miles from Anacortes, Washington, the pair arrived in Bar Harbor, completing a two-month trek ...
3-year-old with rare genetic disorder, search for a cure
July 25 is the awareness day for a very rare syndrome, but one that a local child has. Carter Dreckman is a 3-year-old from ...
Teenager's gap year charity cycle challenge
A teenager is taking on a charity challenge to cycle over 2,600 miles (4,184 km) around the UK visiting 60 Great British ...
Bank of America Securities Reiterated a Buy Rating on Ultragenyx Pharmaceutical (RARE)
Ultragenyx Pharmaceutical Inc. (NASDAQ:RARE) is one of the Best 52-Week Low Stocks to Buy According to Analysts. On July 14, ...
US FDA declines to approve Ultragenyx's gene therapy for rare genetic disorder
The U.S. Food and Drug Administration has declined to approve Ultragenyx Pharmaceutical's experimental gene therapy to treat a rare inherited disorder, citing manufacturing concerns, the company said ...
Teen to visit all 60 UK racecourses on charity cycle
A 19-year-old is due to cycle 2,600 miles, visiting all 60 of the UK racecourses to raise money for Diverse Abilities and the Injured Jockeys Fund.
Two men bike 4,200 miles, spreading awareness about rare neurological disorder
Maine (WABI) - After 61 days and approximately 4,200 miles, two men have made it to Maine to wrap up an epic journey. At the ...
Garretson family raises awareness for rare genetic disorder, CTNNB1 Syndrome
Luke and Paetyn Dreckman will be hosting the Caring for Carter Golf Tournament to raise awareness and funds for the rare genetic disorder their son was diagnosed with at 10 months, CTNNB1.