Cyclists led by Charlie Nuck will arrive in Bar Harbor Saturday to raise awareness and funds for the rare neurogenetic ...

Two men have cycled across the country to honor a late friend and raise awareness and funds for a rare disorder.

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July 25 is the awareness day for a very rare syndrome, but one that a local child has. Carter Dreckman is a 3-year-old from ...

A teenager is cycling more than 2,600 miles (4,184km) around the UK to visit 60 racecourses as part of a charity challenge.

That’s exactly what Charlie Nuck and Todd Downey, both from Ohio, have done. After biking more than 4,200 miles from Anacortes, Washington, the pair arrived in Bar Harbor, completing a two-month trek ...

Ultragenyx Pharmaceutical Inc. (NASDAQ:RARE) is one of the Best 52-Week Low Stocks to Buy According to Analysts. On July 14, ...

Luke and Paetyn Dreckman will be hosting the Caring for Carter Golf Tournament to raise awareness and funds for the rare genetic disorder their son was diagnosed with at 10 months, CTNNB1.

Maine (WABI) - After 61 days and approximately 4,200 miles, two men have made it to Maine to wrap up an epic journey. At the ...

A woman with a rare genetic disorder called Apert syndrome turned an ordinary treadmill run into an extraordinary 26.2-mile feat. She documented it on TikTok and it went viral.

A 19-year-old is due to cycle 2,600 miles, visiting all 60 of the UK racecourses to raise money for Diverse Abilities and the Injured Jockeys Fund.

Ultragenyx Pharmaceuticals' GTX-102 earns FDA Breakthrough status after early data shows sustained progress in Angelman syndrome patients.