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  1. Rare Diseases Support, Resources & Help | NORD

    Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific …

  2. Rare Disease Research Grant Program | NORD

    Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …

  3. Living with a Rare Disease | NORD

    NORD helps those living with rare diseases find patient assistance programs/financial assistance programs and help them get a diagnosis.

  4. Contact Us - National Organization for Rare Disorders

    Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email …

  5. Sotos Syndrome - Symptoms, Causes, Treatment | NORD

    May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and

  6. For Clinicians & Researchers - National Organization for Rare …

    Access comprehensive resources, research tools, and professional insights for clinicians and researchers specializing in rare disease diagnosis and treatment.

  7. Patient Assistance Programs - National Organization for Rare …

    Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …

  8. Rare Disease News - National Organization for Rare Disorders

    6 days ago · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

  9. What You Should Know About Undiagnosed Rare Diseases | NORD

    NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

  10. Norrie Disease - Symptoms, Causes, Treatment | NORD

    May 29, 2020 · Learn about Norrie Disease, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and