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Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s unpredictable. It’s lifelong. It’s invisible to many. Rare doesn’t mean small. It means underfunded, misunderstood, and often unseen. Hope is rare. And so is her strength. 💜🦋 #RareDiseaseDay #RettSyndrome #MECP2 #RareButStrong
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